Pregnanct with Twins and Told One of the Babies Has Low Amniotic Fluid.

Updated on June 03, 2008
M.H. asks from Yorkville, IL
22 answers

Hello Moms. I am 22wks pregnant with twins (Fraternal - Boy/Girl). I had a Level II ultrasound done at 20wks and was told that one of the babies has very low amniotic fluid. The Dr. couldn't locate the bladder and/or kidneys. I was asked to come back in two weeks to check the fluid levels which I did today. Again the Dr. advised that the amniotic fluid is still too low. However, he believes he located the kidneys and the bladder. I am to go back again for a follow up ultrasound in two weeks. My question is have any of you moms out there has a similar experience? What was the outcome? I've been pretty much told to concentrate on the healthy baby. I would like to get a second opinion as I feel I do not want to give up on my babies. I still feel her moving and so far her heartbeat is strong. Any advise and/or suggestions would be greatly appreciated.

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So What Happened?

We went for a second opinion and met with a perinantologist who is internationally known for his work with high risk multiples pregnancies. He confirmed our worst fears, our little girl had no kidneys and a bladder could not be found.He explained everything in which we could understand and what we could expect at delivery.

After preterm labor and bedrest, I made it to 35wks 1 day. Went in for a routine appointment and after examination I was told I was 3cm dialated and a bulging bag could be felt. I was admitted to the hospital for delivery via c-section since both babies were breeched (8/26/08).

Our son was born @ 6:30pm at a healthy 6lbs 10ozs and did not need to go to the NICU. Our daughter was born @ 6:31pm 3lbs 12ozs, she was taken to the NICU. After a strong fight, she passed away in our arms the next morning 8/27/08 from respiratory failure due to lung hyperplasia due to bilateral renal Agenesis.

The nurses took tons of pictures and also put together an album and keepsake box for us.

We had a small servive and a funeral for her. She was laid to rest 9/2/08. She will forever be in our hearts.

M. H.

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J.E.

answers from Chicago on

YOU NEED TO DO IVIg this is the only thing that will save yoru baby for now. please contact dr kwak kim in vernon hills at rosaland frankin university reproductivive immunonolgy department. Please I ahve 7 years of experience with this and unless there is no organs you need to do this now every 28 days maybe even every two weeks. please feel free to e-mail me about it more or there is a yahoo group too with women just like you for support,
you are in my thoughts
J.

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A.T.

answers from Chicago on

My Dr. found low fluid with both my twins, but I was 36 weeks along so I had a c-section that day. I don't know what they do for this as far along as you are. Stay positive, it does work. I was worried my girls were going to be born very early and end up in the NICU, but that didn't happen. Also, like someone else said, try the forums on www.twinstuff.com. I love that site!!

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B.L.

answers from Chicago on

I too had a Level II ultrasound done and was told that my daughter had a rare cyst in her brain and that only with time will we know the outcome. At first I was devastated cuz no mother wishes to hear bad news so I feel your pain. But a positive advice I can give u is to try to relax and stay positive. What I did to keep positive and to relax my self and the baby I was carry was listen to humble positive music. I took relaxing showers. I also wrote down and constantly read: "I believe the Lord has blessed my womb with a healthy beautiful child of God. I believe the Lord has great thing in store for my baby." I am happy to say my daughter was born just fine. We have to bring the positive vibration within ourselves. I believe it works miracles. I hope my advice supported u in someway. I believe your twins will be born extremely healthy and bring great joy to you and your family. : )

God Bless
Bea

1 mom found this helpful
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E.G.

answers from Chicago on

I have not been in this situation but I do know that the power of prayer will get you through all things. Just Pray that both babies will be born healthy. I will pray for them each night too. My daughter is a minister and I will have her to pray for the babies too. God can do miraculous things because he has done so many things for me. Stay prayerful, it works! Let me know when your TWO beautiful healthy babies arrive M..

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D.B.

answers from Chicago on

Hi M.,
I am a neonatal ICU nurse. Oligohydramnios can be be a serious condition for your baby but it doesn't always have a bad outcome. You need to see a high-risk OB so they can monitor your baby. Hang in there. I know this must be a stressful time for you. Try to continue to eat and get enough sleep. Both your babies need you healthy and rested right now.
My prayers are with you and your babies.
D.

1 mom found this helpful
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K.B.

answers from Chicago on

I had extremely low amniotic fluid with my son at my 40 week check-up, so they induced labor. I asked if it could have been due to my own dehydration/not drinking enough water, and they said that was a possibility. (I had not been drinking enough, and I knew it.) My next pregnancy with my daughter, I consciously drank TONS of water all the time, and every ultrasound appointment, they confirmed I had more than enough amniotic fluid. Who knows if that was actually the cause, but deep down, that's what I think about my particular situation. Doesn't hurt to try! I will keep you in my thoughts and prayers as you look toward the birth of two healthy babies!

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R.C.

answers from Chicago on

If your OB/GYN is not a high risk Dr, then you need to be referred to one (or just GO on your own) to one ASAP. Also, make sure the hospital you are planning on delivering at has the proper NICU level. (Good Sam & CDH I believe are both level 2, Elmhurst transfers babies to Loyola if they cannot handle them, so check your hospital.)
Also, not to be a downer or anything, but if things do NOT work out for the best, I'd encourage you to find a strong support system. Family, friends, church, counciling, whatever works best for you.
I'm a member of BRAMBLE on Yahoo groups, which is for Chicago area Moms who have lost one (or more) babies during a multiple pregnancy.
No offense, but I hope that you do NOT have to join us.

Good luck!

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S.W.

answers from Chicago on

I believe in the power of prayer- and as a mom we can not just concentrate on one baby. I know several moms who have twins- with one of the twins with down syndrome. ask your gyne what the low amniotic fluid means risks etc. and get a second opinion.

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C.F.

answers from Chicago on

M.,
I can't even imagine being in your shoes. You must have a million questions and emotions all at once. This has never happened to me, so I can't relate. But, I've known fear about the well-being of an unborn child. My heart goes out to you. I have no idea of where you are spiritually, but I want to share with you a verse from the Bible..... It's from 1 Chronicles 28:20. Basically, King David (same David that fought Goliath) is speaking to his son, Solomon, who is to be the new king. As the new king, Solomon will be in charge of building the temple. David says, "Be strong and courageous, and do the work. Do not be afraid or discouraged, for the Lord God, my God, is with you. He will not fail you or forsake you." So, you're not building a temple ;) but we know God's character is the same yesterday, today, and forever. God is with you and while we may not comprehend all that happens in life, God is a good God and He longs for us to draw near to Him. I can say from experience that He has comforted me time and time again. He provides a peace that makes absolutely no sense whatsoever, given the reality around us. I will pray for you by name tonight...for you and your sweet babies.

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J.B.

answers from Chicago on

I have boy/girl twins and was told the same thing but it was closer to term about 30 something weeks. I was monitored weekly and was told to rest. I think the biggest concern is they want you to have a certain amount of fluid at delivery. I was never told that the babies were at risk because of the low fluid. I delivered at 38 weeks and had two healthy babies. I would talk to your doctor and get as much information about it as possible from him/her. Try not to read about it in books and websites -- they always give you the most extreme situation. It will drive you crazy!!!! Good luck to you.

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M.D.

answers from Peoria on

HI M.,
I did not have twins but was told that I had low amniotic fluid by my OB/Gyn and was sent to a Perinatalogist. He said it was slightly low took me off work and put me on bedrest and I ended up delivering a healthy girl at 37 weeks. I think sometimes Doctors are alarmists due to threat of lawsuits etc. and I am sure ther genuine concern. Everytime I went to the Dr I was told of some new problem I had and it had me scared to death. I don't know the answer to your situation but I wish you all the best.

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K.D.

answers from Peoria on

Hi M.,

I am a mother of 14 month old girl-boy twins. I recommend Dr. Iannuci also. he works out of Central DuPage, Lutheran General and I think also Rush Copley. (What a busy guy)I delivered at CDH.

I had different problems, BUT...it sounds like you need a perinatologist, or high risk OB GYN. This situation is probably out of scope for a general practicioner.

I was lucky my regular OB sent me to Dr. Iannuci. You may have to go on your own, or request a referral to a high risk specialist.

God Bless you, I wish you and your babies the best!

K.

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T.P.

answers from Rockford on

M.,

I would get a second opinion. I have a 2 year old and am pregnant with our second child. My Dr. told me to drink a gallon of water a day when my fluid was low (this happened with both pregnancies). I have been and over the last 2 weeks my fluid has gone up. Hope this helps.
Good Luck! T.

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E.D.

answers from Chicago on

Hey M.!

I have no experience with this and no helpful advice. Just wanted to say your instincts are right on - don't give up on your other baby! I know this is very stressful but drink your water, get your rest and try to relax as much as possible. Accupuncture might help balance things out. At the very least it will help ease your mind. I had a very high risk pregnancy with my daughter and accupuncture was a life saver for me for relaxation.

Good luck to you and the babies!

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S.P.

answers from Peoria on

Hello. I did not have twins, but I did have low amniotic fluid with my first daughter. It was scary, and I was on bedrest for 8 weeks, and had sonos every other day (and every day the farther along I got). Insist that your ob/gyn does sonos very often. I had to have an emergency c-section at 37 weeks...so we almost got to the end. My daugher is just fine. Good luck to you!

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T.B.

answers from Chicago on

I did have twins but not the same issue. I am sorry that I can't offer you advice but I felt I just wanted to tell you to not give up! I can't imagine the scare but I will be praying for you!! I do hope this turns out well for you and the babies and just keep hope! May God bless and watch over your situation.

T.

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D.B.

answers from Chicago on

I had low amniotic fluid (pockets) with my oldest son caused by hypertension. They put me on bed rest, cut out salt and anything else that may deplete your fluids. Told me to drink lots of fluids. I had ultrasounds every week in the doctors office and was considered high risk. If the baby lays on his or her cord without the fluid keeping them suspended so they do not lay on their ambilical cord. At delivery which was induced at 36 weeks due to low fluid they slid a tube into me that supplied some type of synthetic fluid to help keep the baby off of the cord during delivery. Not sure if a C section would have been a better option. My next 2 were delivered that way and my pockets checked routinely with them. Baby came out healthy and happu with no complications other than a broken collar bone. Hope this helps.

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T.P.

answers from Chicago on

I had a low fluid level with one of my twin girls at 21 weeks. It ended up being TTTS (Twin-to-Twin Transfusion Syndrome) which generally only happens with MZ (identical) twins not DZ (fraternal) twins. We did a amnio reduction with the twin that had a lot of fluid and it evened out. I ended up on bedrest so did a lot of reading on TTTS and did read of a few cases of TTTS in DZ twins. It is very rare but possible. One of the signs of TTTS is differing fluid levels as well as a small or enlarged kidney and bladder. I don't know if this is what your babies have but I would ask to be referred to a high risk doctor and see them right away. If it is TTTS you want to get it treated ASAP. I saw Dr. Iannucci out of Lutheran General, he was fabulous!!! Don't give up on your babies. Good luck I hope it all turns out well. You will be in my prayers.

Also, let me know if you need advice on handling a toddler and twins. My son was 16 months when my twins were born :-)

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K.C.

answers from Chicago on

Hi M. -
While it is scary to hear that news... the amniotic fluid can go up and down. I thought it only continued to go down... but it fluctuates. I had low fluid with all my 3 children and it was monitored on a weekly basis. Avoid strenuous activity, avoid caffine, and stay positive. I'll keep you in my thoughts and prayers.

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C.F.

answers from Chicago on

I'm having a hard time with knowing what to say. When I hear of low fluid, my mind goes to the worst thing, because that's what happened to my brother and his wife. On the other hand, what happened is extremely rare, so if it weren't for what happened, I wouldn't even be writing. But I don't want to scare you unnecessarily. I'll share, briefly, what happened with my nephew, but please, please don't assume that's what will happened. The odds are so much against it. The only reason I'm sharing is because I don't agree with the idea of pretending bad things don't happen and trying not to accept it. You'll see why by the end of the post. But, again, please don't assume this is what's going on. This is for general knowledge.

As long as they can find functioning kidneys and a bladder, I wouldn't worry overmuch. Do what the doctors say to stay healthy. If they don't find functioning kidneys, which is what happened with my nephew, or if it turns out sad for another reason, you will need to have a support system in place. Actually, I think EVERY parent needs a support system in place.

In my brother's case, they found on ultrasound that their son did not have kidneys at all. It was confirmed through several more experts. There was very little amniotic fluid because the baby couldn't urinate. Unfortunately, they let his wife's church people convince them that if they prayed hard enough, God would put working kidneys into the baby's body. Of course, that is not how it works, but they didn't accept that this was happening until the night before the birth. Now they have a little angel to watch out for their second baby, a healthy little guy. He will be one this summer. So out of tragedy, some good has happened. I doubt Christian would be here if Willis hadn't passed, not that we'd want such a thing to happen.

I'll keep you in my thoughts for a healthy set of twins. Please let everyone (especially me) know what you find out. I hope the baby is well, and I will sigh in relief. If something happens, please remember that there are people here and through your local groups that are here for you, as well.

Best of luck for two happy, healthy babies!

N.P.

answers from Chicago on

I am so sorry to hear. Unfortunately, I haven't heard of this in multiples or singleton. Maybe checkout twinstuff.com
Their forum was (and still is many times) a life saver for me and some of the moms on this site might have some knowledge and support.

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S.M.

answers from Chicago on

I have not personally went through this but, I thought I could lend so advice. Don't give up on either of them. Concentrate on both babies. I work in a neonatal intensive care unit and we have babies born everyday that have low amniotic fluid. It depends on how low the fluid is. I am not a doctor but, I just wanted to let you know there is a chance. I am not saying for certain both babies are fine. I wish you the best of luck and congrats on your pregnancy.

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