Autism and Absence Seizures...

Updated on September 19, 2010
L.D. asks from Spring, TX
4 answers

Hello Moms, I am in need of some advice from anyone who has either experienced absence seizures themselves or has a child going through this. My 3 year old who was previously diagnosed as being on the spectrum for autism has now been diagnosed as having absence seizures. Not to rule out that he might still have autism, but there is a possibility that it could be just the seizures causing other autistic like behaviours (we are seeking a medical diagnosis for that). Our neurologist wants us to do an MRI to see what might be causing the seizures but has put our son on Trileptal in the meantime( we can't get in for the MRI until mid-December and it takes 6-8 weeks for results). Most all of the drugs on the market for seizures seem horrible, but the neuro didn't seem to think that there was any natural remedy that would work for his particular type of seizures (occuring in the frontal lobe of the brain). He is only on day 2 and starting out with only 1ml, and he seems out of it. I am so frustrated with what to do, but I feel like we have to give it a shot since we have so long to wait for everything else. Anyone have success with this treatment? Any other treatments that you might recommend? My husband and I are having a hard time with this and really need any advice you could offer. We just want to do what is best for our son. Also, anyone know of any support groups for Dads with autistic children? I really feel that my husband would benefit from having other Fathers to talk to. Thanks in advance!

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N.A.

answers from Houston on

Hi L., as far as a support group just for "dad's", I don't have any information on that. But, we have a group in Kingwood/Atascocita, which you can find on Facebook called ASD Families -- Kingwood (which isn't too too far from you) that is an Autism Support group for the whole family. We meet every so often and hang out and talk, or you can just go on the site and get helpful information. My husband and a couple of the other dad's go to all the functions with us, so that might help. Anyway, if you would like you can join on there. Good luck :-)

P.W.

answers from Dallas on

My son had seizures. We really loved our neurologist and he guided us through childhood. If you like your neurologist talk to him/her. If you don't, then making a change may help. There are many different medications and I am betting he may have contacts for support groups.

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S.E.

answers from Philadelphia on

I cannot give you treatment ideas, but I can tell you to stick with tests and treatments. My niece was premature and had absence seizures. It turned out that she was having TIA at the same time and had my sister not pushed and pushed they would not have found them. The news at first was horrifying. They gave my sister awful news after more awful news - she would be severely impaired, she would never be able to care for herself etc etc.

BUT! Medication, lots and lots of physical therapy and huge commitment by the whole family to help this child and guess what? Last year she graduated from college! She is great. She has some gait issues and seems "clumsy" to most, but to us she is beyond wonderful.

Do some research, don't give up! Find a school that may have support groups for parents. Good luck!

K.M.

answers from Chicago on

Ok, I cannot really help with your question, however I also can not ignore the need for support. If you contact ECI, early childhood intervention, they can give you support group information. Your child is too old to partake in the services they offer however I am sure they know where you can go for support. Also the special education department of your school district may have some insites as well.
I understand the feelings of a mother who feels like a sitting duck just waiting for a doctor to tell her what to do, please remember they are professionals in thier feild and you are a professional in YOURS ... BEING YOUR SONS MOTHER, do not let your voice get lost in the shuffle, stay strong and tape record all doctor's visits, if they say no find a new one. You are getting too much information to process at one time. The brain only holds on to bits of the information and you can easily missinterpret (spelling) what they are telling you. Totally different situation was my case but we had way too many specialists and therepists to process all of what they had to say correctly especially when we were emotional ourselves. Best of everything to you and just remember you CAN handle it or it would no be there for you to handle.

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